Support uveal melanoma research

A vision for better eye melanoma therapies

Within 10 days of being diagnosed with uveal melanoma, Michelle Taylor underwent a life-altering surgery to remove her affected eye. But uveal melanoma hasn’t stopped this busy regional NSW mum from exploring the world and living a full life with her family.

Now Michelle is sharing her experience to help others going through a uveal melanoma diagnosis and has joined our Uveal Melanoma Registry to support the development of new therapies for this disease.

“It’s my goal to ensure others don’t have to go through what I did – the uncertainty and lack of information. By taking part in the Uveal Melanoma Registry and sharing my knowledge with others going through a uveal melanoma diagnosis, I hope to shine a light on this rare condition.”

This holiday season help us raise $15,000 for uveal melanoma research

Our goal of $15,000 will support an additional 20 uveal melanoma patients to join the registry.

With only 200 Australians diagnosed with uveal melanoma each year, it’s vital to capture as much patient data as possible for this rare cancer. Twenty extra patients will boost the registry with more robust data to support the development of new uveal melanoma treatments and management guidelines.

A rare and often lethal form of melanoma

While most people have heard of skin melanoma, ocular (uveal) melanoma forms in the eye. Although rare, uveal melanoma is difficult to diagnose and is often lethal, with 25% of patients requiring removal of the affected eye and 50% of patients developing metastatic melanoma.

Currently there are few accepted treatments or management guidelines for uveal melanoma, which is why we have established the Uveal Melanoma Registry in Australia. 

Your donation will support patient-centred research

Your donation will directly support the Uveal Melanoma Registry – the only uveal melanoma patient registry in Australia.

The registry is gathering real-world patient data to identify predictive clinical features to support earlier diagnosis and to improve patient care. The registry is also collecting data to support drug development so that better treatments for uveal melanoma can be found.

Importantly, patients can provide direct feedback to the registry, offering a holistic view of the impact of uveal melanoma and its treatments on their quality of life.

Learn more about the Uveal Melanoma Registry

The Uveal Melanoma Registry is led by Melanoma and Skin Cancer Trials (MASC Trials) with the support from its special interest group, the Australasian Ocular Melanoma Alliance (AOMA). For more information including sites, investigators and patient stories, visit the Uveal Melanoma Registry.

All donations to MASC Trials over $2 are tax deductible and you will be sent a tax receipt. If you would like to make a donation by cheque or bank transfer, please email hello@masc.org.au for further details.

MASC Trials is a registered not-for-profit research organisation (company limited by guarantee), and has an academic affiliation with Monash University, with a dedicated centre supporting its research activities, the Melanoma and Skin Cancer Research Centre, within the School of Public Health and Preventative Medicine.